A COMMON STRUGGLE

Patrick J. Kennedy is a former member of the U.S. House of Representatives who has struggled with mental illness and addiction for most of his life. He has become a leading force in the passage of the Mental Health Parity and Addiction Equity Act of 2008, a U.S. law that states that it is illegal to treat diseases of the brain differently than those of any other part of the body. The battle ahead is for the law to be enforced in the face of health insurers who stand to profit by denying the full range of coverage for people suffering with mental illness and addictions.

In his 2015 book, A Common Struggle: A Personal Journey Through the Past and Future of Mental Illness and Addiction, Kennedy offers personal reflections on the impact of trauma, addiction and mental illness on the extended Kennedy clan. He talks about the rocky relationship he had with his dad, the late U.S. Senator Edward “Ted” Kennedy and about his mom Joan’s battle with alcoholism.  

At the heart of the memoir are Kennedy’s own revelations about his co-occurring mental illness and prescription drug and alcohol addiction, his path to recovery, and his ascendance to becoming, arguably, the nation’s leading advocate for parity and equity in mental health and addiction care. Kennedy has fought hard to lift the veil of ignorance about mental illness and addiction and to expose the health insurance industry’s tradition of denying and restricting access to care for individuals with brain illness.

Kennedy radiates a fire for eradicating stigma and ending discrimination against people with brain illness. According to One Mind, a nonprofit organization he co-founded, that is dedicated to benefiting all affected by brain illness and injury, “One of the harmful effects of stigma is that it can lead to discrimination. It could be as obvious as someone making a negative remark about your mental illness or as subtle as someone avoiding you because they think you could be unstable, violent or dangerous.”

On their website, One Mind lists some of the ways that these attitudes can be damaging and even dangerous. For example:

·      Reluctance to seek help or treatment due to the labeling

·      Lack of understanding by family, friends, co-workers or others you know

·      Fewer opportunities for work, school or social activities or trouble finding housing

·      Bullying, physical violence or harassment

·      Health insurance that doesn't adequately cover your mental illness treatment

·      The belief that you'll never be able to succeed at certain challenges or that you can't improve your situation

Kennedy rightly frames the inequities that people with mental illness and addictions face as a matter of civil rights.

What he has accomplished, which he freely acknowledges is the result of a collective effort, has already gone a long way to wiping out stigma and increasing people’s access to mental health and addictions care. His goal, he states, is to launch “a new civil rights movement, to finally force medical equality for diseases of the brain.”

Tens of millions of Americans owe Patrick Kennedy a debt of gratitude for leading the way. Now all of us must carry the ball forward by treating children and adults with brain illnesses with dignity; and demanding that government enforce parity and equity for all and put an end to discrimination.

https://longislandweekly.com/a-common-struggle/ 

Andrew Malekoff is the Executive Director of North Shore Child & Family Guidance Center, which provides comprehensive mental health services for children from birth through 24 and their families. To find out more, visit www.northshorechildguidance.org.

"IF YOUR CHILD IS NOT HEALTHY, MY CHILD IS NOT SAFE"

“If your child is not healthy, my child is not safe”

by Andrew Malekoff

Are we going to continue to catch the children that are falling through the cracks or are we going to abandon them?

There is a critical decision that has been made in Albany that will impact negatively on thousands of children and families across Nassau County and that will dramatically increase costs to taxpayers as increasing numbers children will be removed from their homes and institutionalized.

The New York State Office of Mental Health (OMH) has implemented a plan that they call Transforming New York’s Mental Health System (the Plan). The Plan is a blueprint for the destruction of children’s community-based outpatient mental health services in Nassau County.

Here are the facts:

The Plan is dramatically skewed in favor of funding services for individuals with Medicaid-only insurance coverage. At North Shore Child and Family Guidance Center, for example, this represents only 7% of people that use mental health services.

The Plan discriminates against the middle and lower middle class and working poor families that are underinsured or uninsured and live in the suburbs of Nassau County. In fact, the Plan discriminates against all people that pay taxes and are entitled to basic mental health services. Although the Plan refers to something called an “uncompensated care” provision, it does not address the deficit generated when serving a preponderance of middle and lower middle class and working poor families.

Community mental health centers are the last bastion in addressing the needs of children and teens with serious emotional disturbances and their families. Private psychotherapists and counselors, with rare exception, cannot afford to offer the labor intensive work necessary to properly serve families that are struggling with serious emotional disturbance. If you know one that can, terrific! Competent private practitioners know when they can handle a situation on their own and when they need to refer to a community-based agency that specializes in children’s mental health; the very place that the New York State Office of Mental Health has kicked to the curb.

The consequence of the OMH Plan will be devastating to the children and families in Nassau County. It will lead to the loss of life, children being plucked from their homes and institutionalized, and families being splintered and destroyed.

I ask you to join me in calling on Nassau County and New York State to restore and enhance local assistance funding – a partnership between local and state government, the local community and client-consumer. Local assistance funding will support community-based children’s mental health centers that would otherwise disappear or be rendered ineffective as the result of the dramatic lack of government support to the suburbs that the Plan represents.

Call Tom Suozzi and your local County and State legislators and tell them:

• That the New York State Office of Mental Health’s Plan discriminates against their constituents - the middle and lower middle class and working poor children and families that are uninsured and underinsured.

• The New York State Office of Mental Health is discriminating against children and youth with mental health disorders and their families.

• To restore local assistance funding in New York State or there will be no responsive, community-based children’s mental health services in Nassau County by the year 2012 if not sooner.

I urge you to take just a few moments of your time to join the fight for children’s mental health. Community mental health center’s are there for you and your family in your time of need.

Things may be going great in your family, but we know that even when they are, the unexpected enters and we all need a credible place to turn to.

And, if you are fortunate enough to never need such help, please bear in mind what a local mom once told me about her reason for supporting children’s mental health, “If your child is not healthy, my child is not safe.”


First published in the Anton chain of 18 newspapers in Nassau County, New York in April 2009.

A PLAN TO GUT MENTAL HEALTH

NEWSDAY
April 21, 2009, p. A34
A plan to gut mental health

More middle-class families are in need of mental health services ["More seek help in stressful time," News, April 20]. Yet, the New York State Office of Mental Health has a plan that is a blueprint for the destruction of children's community-based mental health services in the suburbs.

The OMH plan - called Transforming New York's Mental Health System - is dramatically skewed in favor of supporting services for families with Medicaid-only insurance coverage. That means it discriminates against the middle- and lower-middle-class and working-poor families that are underinsured or uninsured.

At the North Shore Child and Family Guidance Center these kinds of families represent almost 75 percent of those seeking our help.

The answer is for Nassau County and New York State to join to restore and enhance local assistance funding - a partnership between local and state government, the local community and the consumer of mental health services.

Andrew Malekoff

Long Beach

Editor's note: The writer is executive director for North Shore Child and Family Guidance Center in Roslyn Heights.